Our Iron Will: Patient association

Living a life as normal as possible is a priority for everyone

The disease and the treatments can negatively impact your social integration, interactions with other people and contribution to society.

Patient support groups and community-based organizations can provide information, assistance, and support to help you live a healthy life.20

United Kingdom
Thalassaemia Society (UKTS)

Greek Thalassaemia
Association (ESTHA)

Patients & Caregivers: in case of need to report an adverse drug reaction, please refer to your physician, asking him to fill in and submit the relevant case report to the concerned Health Authority, according to the Pharmacovigilance requirements in force in your Country. Nevertheless, please be kindly reminded that each patient can report any such cases directly to the national reporting system.